The Problems of Health Care of Patients with Orphan Diseases in the Sverdlovsk Region on the Example Of Primary Immunodeficiencies

Public health and the public health services organisation

Karakina M. L., Tuzankina I. A., Beltyukov E. K.

Abstract.

The system of health care for patients with orphan diseases functions more 1 year. On the example of the regional center of clinical immunology was indicated the problems of delivery of patients with primary immunodeficiency health care, was scheduled perspective plans for addressing them.

Key words:

orphan diseases, primary immunodeficiencies, prevalence, health care, Center of Clinical Immunology.

Authors:

Karakina Marina L.

Institute of Immunology and Physiology of Russian Academy of sciences,Regional Children Clinical Hospital №1, Regional Clinical Hospital №1

Tuzankina Irina A.

Institute of Immunology and Physiology of Russian Academy of sciences,Regional Children Clinical Hospital №1

Beltyukov Eugeny K.

Ural State Medical University Roszdrava

620 086, Toliatti str., 7­77, Yekaterinburg, Russia

е­mail: mkarakina@gmail.com